7 years ago, I decided I'd had enough
I was diagnosed with stage 4 endometriosis in 2009 at 25 years old, after a lengthy and miserable search for answers, and went on to have 3 further surgeries before I realised things weren't going to change.
I'd spent a lot of time during my teenage years in the doctor’s room, complaining of fatigue, colds and flu that never went away. As the years went on, I was prescribed more and more antibiotics, painkillers and eventually, antidepressants. Looking back, it was obvious I had endometriosis.
I had a family history, many typical symptoms including spotting, pain and heavy bleeding, but the doctors insisted it must have been some dodgy cervical cells that needed removing, then a nasty pelvic infection that needed 2 simultaneous antibiotics, then a bladder infection, and so it went on. For nearly 10 years.
Eventually, I saw a private gynaecologist who also insisted it wasn’t endo. So I insisted on a laparoscopy. The same gynaecologist who later confirmed, as I came around from anaesthetic, that I had stage IV endometriosis. He used the words ‘riddled with it,’ and suggested a number of aggressive hormone therapies including GnRH agonists.
That was only the beginning
I got a referral to a leading public hospital where I underwent a further 3 laparoscopic excision surgeries.
I felt like an observer in this process; totally lost and never participating in or understanding the decisions being made for me.
Then something changed.
I realised I never wanted to hand over total responsibility for my health to anyone else ever again.
I saw a number of naturopathic practitioners on my journey and began to see how powerful food, supplementation and lifestyle change were. But something was missing.
So I decided to make it my mission to get informed and empowered. I went back to university and studied biochemistry and nutritional therapy at The College on Naturopathic Medicine in London. Every day was a “why has nobody told me this?!” day.
After much training, researching and experimenting, I finally had control of my endometriosis. Whilst it's never easy and I also have adenomyosis and fibroids to content with, I've been able manage the disease to this point.
I've also lived in Malta working as resident nutritional therapist, and have achieved more than I ever thought possible.
My life's purpose is to share the knowledge I've gained on this crazy and unexpected journey. Endometriosis diagnosis should not be a life sentence of pain and misery.
Until we are educated about the disease and how our daily decisions impact our symptoms, we are at the mercy of a medical system that doesn't know how to help us. So that's where I come in.
Now, having worked with hundreds of endo girls all over the world, I've developed a system using genetic testing and educational coaching which provides evidence, structure and support.
It's everything I wish I'd had access to 13 years ago.